Pain

Sometimes you can’t tell just by looking.

Maybe when I move, you’ll see a pause, hear my breath. But just a little.

You can’t see the fire I feel, the ripping burn that just settles in. The raw grind and pop. The loudness of it in my head makes it hard to hear the outside world.

When asked, I pause, ‘fine’ I say- it’s exhausting to talk about any other way.

The forced encouragement I whisper to myself to move, stretch, to do what simply needs to get done, to not cry or complain.

It’s always there.

Just by degrees

A good day( usually after treatment), it’s hardly a thought. Not forefront in my thinking, not in my way.

A bad day, sometimes there’s a reason, sometimes there is not. It creeps in like a spiked steamroller. The loudest voice in the room. Some days only one sings it’s angry song. Some days it’s a duet.

At this moment it’s a four part harmony with a smouldering back drop. No steadiness, no focus available, except to will myself to the task at hand.

I do the things I can and hope it’s enough, I reassure the frustrated tired me that relief will come.

It’s all I can do, because some days you can’t tell by looking.

What to do now

Inundated with the ugly of the world. Images of hate, frustration, disgusting lack of compassion, education and decency. It’s easy to forget that this is not all there is.
Yes, we need to bear witness to these atrocities so we can help change the narrative. We need to be aware so we can be the change.
But the constant drone of the shit becomes defeatist. It can leave you numb, spiteful and slowly turn you into a version of the monsters we are so badly trying to beat back.
So as a reminder of why these things need to change, why inclusion, humility, kindness and love of creation need to prevail I am redirecting my focus today.
Today I am focusing on the good, the inspiring, the beautiful.
There are people out there with things to celebrate
Birthdays
Anniversaries
Hard won accomplishments
There are people out there bringing love and gifts of time, connection and grace.
There are beautiful places in nature, in our neighborhoods, in our homes that bring sanctuary and peace.
Today I turn my attention ( posts and personal notes, calls) to these things. To strengthen my resolve to get back into the ‘battle’ with my heart, compassion and values in tact.
Radical love. Radical compassion. Today this is my armour.
✌🏻💜🥳

A Moment of Healing

Trust yourself

Place your hands on the warmth of your skin

Breathe, you are here

There is no sting

Pressure of the phantom hand

Trust yourself

Place your hands with compassion, the places once scarred, mark the beautiful start

Breathe, you are here

Place your hands, the fleshy parts, once blue, now rosy pink. There is no harm

Only honour, only love

Trust yourself

Place your hands, over your heart. Offer compassion to the place ruined not by love but by betrayal

Breathe, you are here

Place your fingers on the softness of your throat, the strong vibration of words now clearly spoken, from a place once stolen

Trust yourself

Place your hands upon the place where your soul resides, accepting both the light and the dark

Breathe, you are here

Place your hands amongst the spaces where your power hums heavy, intimately yours, you owe it no access from others.

Trust. Yourself.

My Voice

Hand across my mouth

Arm across my throat

Words slapped from my lips

These are things that stole my voice.

Speaking to the ether

Not being heard

being told ‘you didn’t say that, I don’t remember, that’s not the way it happened’

These are the things that stole my voice

‘Do not speak until spoken to, no one wants to hear your opinion, no one will answer your screams’

These are the things that stole my voice

Years of tangled compression, oppression these are the things that have stolen my voice I can raise my voice to stand for you

I can raise my voice to stand for social justice Hear the echos? They come loud and clear

But when it comes to self, when it comes to me , it fades to silence

The old compression, oppression, squeezing in, taking the air, taking the sound,

restricts, constricts

My wants, my needs, my feelings, my thoughts I want to stand firm to say NO

No that’s not what I want

No that’s not who I am

These are the things where I’ve lost my voice. The sticky weapons of violence and cruelty that is wound around my voice for years and years and years

Squeezing away the sound, the breath, the air this is the tangled mess I seek to undo

to breathe life

this is where I want to find my voice

this is where you will hear me clearly say

No these are the things that hurt

No these are the things I don’t want

Yes these are the things that are right

Finally my voice will match my world voice

I will be heard

I will be heard

A Prayer for Chronic Illness

Now I lay me down to sleep

I pray the pain is low and meek

If it rises before I wake

I pray for the right meds to take

Now I lay me down to sleep

It’s quiet here, so I can weep

The smile I wore all day was fake

It’s almost more than I can take

Now I lay me down to sleep

I pray for rest, for I feel weak

Let the monsters be still, until I wake

So to the next morning I will make.

perception reflection

What do you hear when my lips part?

A passionate sigh

An orgasm not yet moaned

A banshee wail

A soothing word

A hard cut

Lies you want to hear

Truth you don’t

What do you see when you look in my eyes?

Passion and fire

Monster damaged shadows

Gentle loved reflection of who you are

Cold calculation

Uncried tears, waiting

Fool

Ancient knowledge

What is your instinct when you touch me?

Treasured

Owned

Used

Thrown away

Imprisioned

Gift

Freedom

Echos

Ripping the scar off to see if a wound has healed
Taking the same road to see if it goes some where new
Speaking the same words to see if you hear something different
Tasting the same bitterness to see if it has sweetened
Letting the already banished ghosts in, serves no purpose other than to create hell. 
This is not where we are, this is not where we are going. We deserve to let the scar lie, travel our new road, speak the loving truth, taste the sweetness that we create, together, forward, no ghostly companions along for the ride. We have been to hell, got the T-shirt, moved on, time to burn the bridge back.